Scottish business leaders take on #fragileXpedition

Published

11th October 2016

A group of leading Scottish business men and women have taken on a challenge to raise awareness of one of the most common, yet unknown, genetic conditions in the UK.

Fragile X Syndrome is the most common inherited cause of learning disabilities, affecting 15,000 people in the UK, yet, many people have never heard of it. This has had a highly detrimental impact on diagnosis, support, and treatment for people with the condition.

Now a group of Scottish CEOs from Vistage - the World\'s leading peer education organisation - have pledged to take on a #fragileXpedition - the UK’s first ever Fragile X awareness campaign, which is organised by The Fragile X Society - the only UK charity supporting those living with the condition.

The campaign aims to raise awareness of Fragile X, as well as funds to support individuals and families nationwide. 

#fragileXpedition brings together the Fragile X community, who are collectively undertaking an 8,026 mile journey - the distance around the whole of the UK - and by walking, cycling, swimming, and even-space hopping, campaigners have been clocking up miles, telling their story, and talking to as many people as possible about Fragile X along the way.

Becky Hardiman, Chief Executive of the Fragile X Society, said: “I am delighted that Vistage Scotland members have decided to come together and raise funds for and awareness of the Fragile X Society by taking on #fragileXpedition.

“Although the work we do is vital in helping to make the world a better place for those living with Fragile X, we would not be able to do this without the support of groups and individuals flying the flag for us.”

Vistage Scotland members include the chief executives of  organisations from a range of business streams, with firms such as Macsween, IIP Scotland, The Law Society and social care charity Cornerstone all represented.

Edel Harris, Fragile X Society board member and CEO of Cornerstone, said: “My Vistage Scotland colleagues and I are delighted to take part in #fragileXpedition – it is such a worthy cause and we are glad to be able to do our own bit to help raise awareness of this condition.

“Between us we will be running, walking and swimming away the miles and hope to raise as much money as possible along the way.”

Today marks European Fragile X Awareness Day – an important date for campaigners, who have now exceeded their mileage and fundraising targets, raising more than £10,000.

To find out more about #fragileXpedition, and Fragile X Syndrome itself, visit www.everydayhero.co.uk/event/fragilexpedition or www.fragilex.org.uk

Cornerstone

Cornerstone is one of Scotland's largest charities and a leading provider of services for people with disabilities and other support needs.

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